Every Great Program Needs the Funding to Grow
Every organization that supports Stella — from research teams to therapy programs, schools, and community nonprofits — says the same thing: the only thing keeping them from helping more kids like her is money.
Stella is lucky. She has a village — an incredible network of doctors, therapists, teachers, researchers, and friends who show up for her every single day. You can meet them all on her Team Stella Strong page!
But we’ve learned that all of these programs that help Stella thrive rely on donations to keep doing what they do.
That’s why it feels like we’re always fundraising — because, in truth, we are. Every month brings another campaign, another opportunity to give back to the organizations that make Stella’s world brighter.
So instead of sending out new donation emails every few weeks, we created this page as a simple, central space where you can find all of Stella’s active fundraisers and causes in one place. Whether you’re here to learn more, or you’re just in a giving mood, this is the easiest way to make a difference for Stella and for kids like her.
Active Fundraisers You Can Join Today
These are current efforts Stella and our family are supporting. Some are national research campaigns, others are local community projects. All of them directly impact her quality of life and the future for kids like her.
Manes for Movement.
Help fund one of Stella’s favorite therapies — horseback riding that builds her strength and independence. This local nonprofit provides life-changing equine-assisted therapy that helps children with disabilities gain strength, confidence, and joy.
Support the program that helps Stella thrive by donating directly through Stella’s Fundraising Page, or visit the Manes for Movement main campaign page to see how Team Stella Strong compares to other teams!
Coming Soon: IFCR Giving Tuesday
This Giving Tuesday, help fund the research that gives Stella hope. The International Foundation for CDKL5 Research (IFCR) leads the charge in finding better treatments — and ultimately a cure — for children like Stella. Every dollar fuels science, supports families, and brings us one step closer to answers.
Cure Rare Foundation.
We’re always fundraising to help advance gene therapy research — the key to unlocking real treatments and, one day, a cure for CDKL5. Every donation fuels the science that could change Stella’s future.
