Cortical Visual Impairment (CVI)
Understanding the most common—and most misunderstood—cause of childhood blindness—and how Stella sees the world
CVI in Plain Language
What it is: CVI happens when the brain has trouble processing what the eyes see. Think of it as a connection issue between the camera (the eyes) and the computer (the visual centers of the brain).
What it’s not: It isn’t caused by problems inside the eyes themselves, and glasses or surgery alone can’t “fix” it.
Why it matters: CVI is now the leading cause of vision impairment in children in the U.S., yet many families (and even some professionals) still haven’t heard of it.
Watch: This 3-minute video vividly simulates how CVI may distort vision from Perkins School for the Bilind.
What the World Might Look Like with CVI
How CVI Can Affect Everyday Life
Children with CVI often see the world in a way that’s very different from what we expect. Here are some of the most common challenges they face:
Difficulty seeing details
Faces, books, and toys may appear blurry, faded, or hard to distinguish.Overwhelm in busy environments
Crowded or cluttered spaces—like playgrounds or classrooms—can be too visually complex to process.Trouble with movement and light
Fast-moving objects might disappear from view. Bright light or glare can make it even harder to see.Visual fatigue
Because the brain is working extra hard to make sense of what’s being seen, kids with CVI often get tired quickly—especially during visually demanding tasks.
Learn More About CVI
If you’re just beginning to learn about Cortical Visual Impairment (CVI), you are not alone. Below are some of the most trusted, family-friendly, and expert-backed resources to help you understand CVI, find support, and advocate for your child or loved one:
CVI Now – Perkins School for the Blind
One of the most comprehensive and approachable resources for families. Includes guides on CVI basics, education strategies, success stories, and support networks.
AAPOS – American Association for Pediatric Ophthalmology & Strabismus
A concise medical overview explaining CVI from a pediatric eye care perspective.Little Bear Sees
Created by a CVI family, this site offers blogs, parent-friendly resources, product recommendations, and the book “Little Bear Sees.”Children’s Hospital Los Angeles (CHLA)
Home to cutting-edge CVI research. Stella participates in studies here to help improve diagnosis and treatment for children with CVI.The Pediatric CVI Society
A professional and parent-led group promoting awareness, education, and best practices in CVI care and support.
💡 Pro Tip: Save or print these links to bring to IEP meetings, therapy sessions, or doctor visits. Knowledge is power—especially in the rare disease world.
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