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      <image:title>Stella's Story - Stella Update December 2023 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Stella's Story - Stella Update December 2023 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1703898974702-D37238VSXU4HR137A69I/Untitled+design+%2810%29.jpg</image:loc>
      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1703897169723-MFM1465LZ9N4IM9F2C4W/IMG_0216.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/2d0d2dc4-ea52-4ddb-bff8-c7a09cbcd056/Calvin+%26+Hobbes.gif</image:loc>
      <image:title>Stella's Story - Stella Update December 2023 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/15cf1adb-e680-40da-875a-ccf0446b8163/IMG_5723.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update December 2023 - Preschool!</image:title>
      <image:caption>Ladies and Gentlemen…we have a natural scholar on our hands who absolutely LOVES school! Stella started preschool in February 2023 at Eagles Nest Preschool in El Segundo. This is a fully inclusive program where Stella is the only kiddo with special needs in the class and she has a dedicated aid with her the entire time. There are very few words to truly describe the magic that the teachers and administrators created for Stella’s first day; all of the kids in her class were ready for her and soooooo welcoming, and now she has the most incredible group of girlfriends that we could have ever hoped for! It is so amazing for Stella to finally interact with kids her own age, and the impact that Stella is having on the rest of the kids in her class amplifies why inclusion matters; these kids are learning patience with Stella—learning “hand-over-hand” to help Stella with fine motor activities—and learning how to safely hold Stella’s hand to guide her and walk through the classroom and playground. As a family we always hoped Stella would be welcomed into this world and have genuine friends, and that is what this school has done for her. It warms our hearts so much when we drop her off at school with her so excited to leave our side for class and immediately hear, “IT’S STELLA!!!” with smiling faces running towards her.</image:caption>
    </image:image>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
      <image:caption>Stella is also now receiving some of her therapies through the school where they are concentrating on Stella gaining specific skills to succeed in a school environment. She is receiving such services as: adaptive PE, occupational therapy, physical therapy, speech therapy, and vision therapy consultations—all on an individual level as well as in a group setting with other special needs kids from other classrooms. These additions to Team Stella have been significant to all of the progress she’s made this year and we don’t know what we would do without them!</image:caption>
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      <image:title>Stella's Story - Stella Update December 2023 - Therapist Appreciation!</image:title>
      <image:caption>We try to make it very obvious about our gratitude for all of Team Stella’s therapists and caregivers in all of the time and energy they give to our little girl to help her live her best life. Stella doesn’t always make it easy on them, and we are grateful for them not giving up on her regardless of if a session is full of smiles…or tantrum screams. This past Valentine’s Day we showed our gratitude to one of Stella’s clinics, NAPA Center, by catering the therapists and employees with the In-N-Out truck to show our love and appreciation!</image:caption>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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    <image:image>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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    <image:image>
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      <image:title>Stella's Story - Stella Update December 2023</image:title>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/b62d2590-71eb-4e4f-9650-ec8a256f921e/IMG_0854.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update December 2023 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/89be4e52-7525-47f4-a91c-aa221393359e/IMG_5132.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update December 2023 - Stella’s Getting a Tricycle!</image:title>
      <image:caption>If you look at photos and videos of Stella and think, “gosh she’s tall”…you’re right! Stella has always fallen around the 97th percentile in height and is currently over 3.5’ tall! Because of this we are starting to have issues finding strollers that fit her and need to start looking for alternative means of transportation. So for her birthday we found an incredible organization, SoCal Trykers, that helps get funding to build tricycles for special needs people, and thanks to some of your very generous contributions we were able to get her fitted on her birthday for her very own Tricycle for us to push her around in! Everything “special needs” takes longer to arrive than preferred and we are hoping to get her tryke by March! Stay tuned for some fun photos!</image:caption>
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      <image:title>Stella's Story - Stella Update December 2023 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <lastmod>2022-07-18</lastmod>
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      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1657581392819-2BHMZLZRKCTL206S02UU/45093058-6afa-39f5-592b-1a3f9975283b.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1657581715254-5GL6WWX2FGZGAWSC1W6Z/99fd628f-f40f-c8cc-a453-bae629ee5a7d.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1657581830399-JT7Z1QDEAP05RHFANBGC/b0bbe8d2-c7fd-816e-e6fc-f51232689fcf.jpeg</image:loc>
      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1657581898450-XQBH700PK8AORRNPWHO6/rid_a77bc8b8-bb37-46b7-b44b-64876cc6d4cf.png</image:loc>
      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1657581547964-2N0QKYI6E5F737ZQFD4X/d8d7f933-65fd-7a8a-cd4f-36e3f630ada6.png</image:loc>
      <image:title>Stella's Story - Stella Update June 2022 - Make it stand out</image:title>
      <image:caption>CDKL5 Awareness Month Event Alert! It’s time to get help Stella get her groove on during June 25-26 by taking part in the STELLA STRONG CDKL5-5K hosted by Stronger Together Fitness! This is a virtual event to raise awareness for CDKL5 and takes place over the last weekend of June to celebrate the closing of World CDKL5 Awareness Month. Our goal is to reach 5,000 followers between all of our platforms by the end of the June! So make sure to spread the word out to your networks! A special thank you to Gate14, Rachel B Fit, and Electric Athletic Club for hosting 5K events in their studios that weekend to provide in person options in supporting Stella Strong!</image:caption>
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    <loc>https://www.stellastrong.com/stellasstory/june-2021-updates</loc>
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    <lastmod>2022-07-11</lastmod>
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  <url>
    <loc>https://www.stellastrong.com/stellasstory/one-year-later</loc>
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    <lastmod>2021-05-17</lastmod>
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      <image:title>Stella's Story - One Year Later</image:title>
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    <image:image>
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      <image:title>Stella's Story - One Year Later - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  <url>
    <loc>https://www.stellastrong.com/stellasstory/september-2020</loc>
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    <lastmod>2021-04-09</lastmod>
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      <image:title>Stella's Story - September 2020</image:title>
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  <url>
    <loc>https://www.stellastrong.com/stella-strong-events</loc>
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    <lastmod>2024-10-16</lastmod>
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    <loc>https://www.stellastrong.com/stella-strong-events/stella-strong-2024</loc>
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    <lastmod>2024-10-16</lastmod>
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      <image:title>EVENTS - 2024 Stella Strong Event!</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  <url>
    <loc>https://www.stellastrong.com/stella-strong-events/0cdj8561w2hfw7ht9yi62681wqyxqr</loc>
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    <lastmod>2023-07-26</lastmod>
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      <image:title>EVENTS - Double Workout Benefiting Stella Strong - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  <url>
    <loc>https://www.stellastrong.com/stella-strong-events/details</loc>
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    <lastmod>2026-01-22</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1655787919857-GDHN63G8KR59JT38W7U2/2+%281%29.png</image:loc>
      <image:title>EVENTS - Stella Strong CDKL5-5K - rachel b fit</image:title>
      <image:caption />
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1655788182856-MIGOU36S3AGUG3U5V7UQ/Gate+14+Logo.png</image:loc>
      <image:title>EVENTS - Stella Strong CDKL5-5K - Gate 14 Fitness</image:title>
      <image:caption />
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1655788275023-XMM7CWQ3A0GWEZC5EW2C/Stronger+Together.png</image:loc>
      <image:title>EVENTS - Stella Strong CDKL5-5K - Stronger Together</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1655788834464-JNO01WBPSPE9NUHXY3I1/Screen+Shot+2022-06-20+at+10.20.19+PM.png</image:loc>
      <image:title>EVENTS - Stella Strong CDKL5-5K - Electric Athletic Club</image:title>
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  <url>
    <loc>https://www.stellastrong.com/donate</loc>
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    <lastmod>2025-12-02</lastmod>
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      <image:title>DONATE</image:title>
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  <url>
    <loc>https://www.stellastrong.com/home</loc>
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    <lastmod>2025-07-11</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/ab4ea88c-e2dc-4c49-8f7b-184f878fcc92/Total+Seizures+Scoreboard.jpg</image:loc>
      <image:title>Home - Currently Stella — and most other CDKL5 kids — suffer from daily seizures.</image:title>
      <image:caption>Since her first seizure on April 13, 2020, Stella has endured more than 500 seizures—each one a disruption to her growth, comfort, and quality of life. Our goal is simple: to give Stella as many “zero seizure” weeks as possible. Every day without a seizure is a day her brain has a chance to learn, connect, and heal. All of Stella’s doctors and therapists agree—reducing seizure activity is the most critical step we can take to support her development and give her the best chance at independence. That’s why we are fighting relentlessly: adjusting medications, exploring cutting-edge therapies, and researching every option with a team that believes in her potential. Because every seizure-free day is a step closer to a future filled with possibility.</image:caption>
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    <lastmod>2021-09-30</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619720597448-TYO2ZT1FP3AODGGTPV31/01.+Telethon+Kids.jpg</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1618006710983-NU5V7JNN44O8XUOGNUV9/Ifcr+logo.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1618006693855-WDR0NQJI1KWRVU9WKQLW/loulou-foundation-logo.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1618006638216-VAQUA8P1XQEZRF1PH19Z/odc-logo-color.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619720634101-Q9CJPT7EJCBXDGR0CEKX/05.+CDKL5+Registry.jpg</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619718381902-D2FXW2QPDK3QUDKUSO5V/06.+Allstripes+Logo.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619720677556-6GV9NGPLMVRQ2K6898Y6/07.+rare-x.jpg</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619555399167-XX5MXYKOAG5BCPFYC78Y/cdkl5-alliance-favicon.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619720900563-SBOYCSHWBGS0LQWUY694/09.+CDKL5+Reseach+Collaborative.JPG</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1619559741243-ZCXOQLN13B8LDAD5NAWJ/hope-4-harper-logo.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1620339794203-WN5Z5MOE33WOBBXTZS7Z/Epilepsy+Foundation.png</image:loc>
      <image:title>About CDKL5</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/606f6eebdeb2bd0b29100ff4/1621262826524-LW915QB7H0AY27OOTGFQ/Rarebase+logo.jpg</image:loc>
      <image:title>About CDKL5</image:title>
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  </url>
  <url>
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